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Our Mission
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The
mission of T.H.E. BRAIN TRUST is to create
a healing exchange of information and support
among People affected by neurological disorders
including patient-survivors, families, caregivers,
health professionals and researchers. Our goal
is to provide and improve online communication
resources. (Our current online support groups
cover a range of brain tumor types and other special
interests.) Through these and other efforts, we
are building a global community of People whose
lives are affected by brain tumors, brain injuries,
and related issues.
Members
of The Healing Exchange are Building Resource
And Information Networks Through
Respectful Understanding of the human
Spirit and Technology.
The Healing Exchange BRAIN TRUST currently offers
fourteen active online support
groups, which provide information and support
to many People worldwide who are affected by brain
tumors and related disorders.
We have four program areas that support our mission
of creating “a healing exchange”. We are promoting
social change by:
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1. Creating, Maintaining and Improving online
communication resources related to brain tumors
and related conditions including: support groups,
informational web pages, recommended reading lists
and a newsletter. T.H.E. Brain Trust maintains thirteen
online support groups on topics ranging from adult
brainstem glioma to benign familial neonatal convulsions,
craniopharyngioma, meningioma, spinal tumors and
more. |
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2. Training People how to use the
internet and the online resources we provide, as
well as training health professionals about on line
resources to help them assist patients and training
premedical students about clinical brain tumor/
injury issues. |
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3. Organizing face-to-face networking
events to augment our online communities by
promoting socializing, fun, support, spirituality,
information and advocacy. These gatherings create
lasting memories that help patient-survivors and
caregivers realize it is their priceless lives,
not brain tumors, that define them. |
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4.
Raising Public Awareness of the issues brain
tumor patient-survivors encounter. We distribute
free Gray Ribbons, and we are a member of the North
American Brain Tumor Coalition. |
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