Support Groups

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Special Interest BRAIN TRUST Groups

Guidelines for Posting

Special Interest On-line Support Groups

The following is a list of support and information groups run by The Healing Exchange BRAIN TRUST. These are special interest online community email groups. They operate a bit differently than the "big" BRAINTMR list. To Join one of these groups send a message to the list captain specified below. More detailed information about each group including a description of the group, its membership and message volume may be found by clicking on the name of the group.

Adult BSG	The Adult Brainstem Glioma online support group is a private email list consisting of adults dealing with the diagnosis of a brain stem tumor and thier caregivers. Researchers and clinicians are also welcome.
List facilitator	Jennifer Gutierrez -- Contact this Facilitator

 

Adultependy	For adults with ependymoma
List Captain	Bruce Blount -- Contact this Facilitator

BFNC & You	For family and care-givers of children with Benign Familial Neonatal Convulsions (BFNC). Researchers and clinicians are also welcome.
List facilitator	Allie Gillies -- Contact this Facilitator

BTCaregivers	Caregivers of brain tumor patients
List facilitator	Sandra Norton -- Contact this Facilitator

 

BTHealthykids	For families where one member has a brain tumor and there are healthy active children
List facilitator	Sandra Norton -- Contact this Facilitator

 

Craniopharyngioma	For craniopharyngioma patients, caregivers and medical professionals
List facilitator	David McCorkle -- Contact this Facilitator

 

DNET	Dysembryoplastic Neuro Epithelial Tumors
List facilitator	Toni Levinson -- Contact this Facilitator

 

Ependyparents	Parents of Children with ependymoma
List facilitator	Jill Dombrowski -- Contact this Facilitator

Lymphoma	CNS Lymphoma
List facilitator	Barry Gates -- Contact this Facilitator

 

Meningioma	For men and women with meningioma
List facilitator	Samantha Scolamiero (acting facilitator) -- Contact this Facilitator

 

Oligodendrogliomas	Support and information for anyone affected by an Oligodendroglioma
List facilitator	Tom Stoddard -- Contact this Facilitator

 

Spinetmr	Information and Support about Spinal Tumors
List facilitator	Bruce Blount -- Contact this Facilitator

 

Young Adults	A group for teens and young adults with brain tumors
List facilitators	Giselle Tejeda and Jennifer Gutierrez -- Contact these Facilitators