Young Adults Online Support Group
SUMMARY
The YoungAdults Support Group is an online discussion in a mailing list format where you can find
Young survivors (18-40), patient caregivers, family members and friends.
The focus of the group is give support, hope, help and strength to
those who are despair. Also, dating because all the time others don't get close to us because they think we're going
to die! We have to show them they are wrong!
Group communication is by a private email list hosted by
T.H.E. BRAIN TRUST, a 501(c)(3) nonprofit organization
specializing in internet based and patient oriented brain tumor support groups.
ABOUT THE LIST
In the group you can find Hope, Help, Fun, Care, Info, Love, Friends, Respect, Humor, And support in those moments
where you don't know what to do or to think. Or when you just want to talk to someone about what's on your mind and
relate to others in or around your age group (18yr-40yr).
Some topics we might discuss include: how to deal with our new problems, the best places where to get help, opinion
and experiences about some medicine or treatment.
Every brain tumor type or related condition is welcome!
P.S. This group will also have fun social gatherings. Stay posted for dates and events.
GROUP FACILITATORS
The hosts of the group are:
Jennifer Gutierrez
Giselle Tejeda: I’m 19 years old and a BT survivor, from the Dominican Republic/Venezuela. I was diagnosed
with a Hemangioblastoma in October 29 of 2001 in the Dominican Republic. I had 2 surgeries, both done by Dr Peter Black
at Boston Children’s Hospital. I love to listen to music, use the computer and help the people when I able to do it.
Because of the surgery now I cannot walk by myself, I have a trach, I see double, I cannot swallow, so I have to take
everything through my GJ tube and I cannot write very well either. Also, because of the tumor I lost 2 yrs of school,
so I’m still attending to the High School in Wayland MA. In which I have to have a special nurse with me all the time.
My speech was affected by the surgeries as well. After a lot of hard work I can talk again but still people who don’t
know me have difficulty understanding me and I feel insecure especially when I speak in English.
CONTACT THE FACILITATORS TO JOIN